I finally decided to get a second opinion on my IBD. Especially since it’s clear cut as to whether I have Crohn’s or Ulcerative Colitis(UC). I tried to make the appointment today with the doctor that was recommended by my boyfriend’s coworker but they weren’t in the office today. It kind of drives me crazy how some doctors have Friday off. But at the same time I’m a little jealous because I’d love to have to only work 4 days a week! I plan on calling Monday and seeing if I can get it. Hopefully they’ll do it. There aren’t a whole lot of GI practices around here and the next closest one would be 1.5-3 hrs away 🙁
Hopefully they can get me in soon. I’ll have to work it in around my work schedule. Or I may just schedule the appt for when they can get me in and just say screw it. My health right now I feel is more important than my job because I can’t do my job without my health. And that is becoming very evident again. My symptoms are the worse in the morning and it can be hard to get going when I’m feeling absolutely horrible. Especially when that horrible feeling chains you to the toilet.
I also realized this week that I don’t like it when people tell me that I look healthy when I say I haven’t been feeling well and that my symptoms are getting worse again. If I could make you feel what I feel I’m pretty sure you wouldn’t say that I’m healthy. Or maybe I should just start carrying around pictures of what my toilet looks like after I’m done with it. They probably wouldn’t say I’m healthy then either. I know it’s an invisible disease but sheesh. My immune system is attaching my body. There isn’t anything that is healthy about that. I’m sure as time goes on I’ll have a list of things that I hate having people tell me that is related to my IBD.
The CCFA does not have any support groups in the area where I’m at. The closest one is now about 3 hrs away. I got some information for the chapter that my hometown is located under and they said that I could volunteer to start a support group since there isn’t one in the area. I would have to go through some training and an interview process before it got started. The CCFA would help out with resources, finding a meeting place and letting the local GI practices know about it. I’m just not sure if it’s something I want to be in charge of at this point. It’s definitely something worth considering though. If I can get in with the new GI I’ll have to ask him if he knows of any support groups in the area before I make up my mind about it.