2021 marks five years doing fundraisers with the Gaming4Guts crew. It’s hard to believe that it’s been that long! I joined in 2017 after participating in the Extra Life charity streaming event raising money for the Children’s Miracle Network. I had wanted to do the same type of streaming event for Inflammatory Bowel Disease. After…
Humira feels like a weekly reminder that I have an incurable autoimmune disease. That this is what my life is like now. That this is what I have to look forward to. And at times it’s depressing. I wish I didn’t have to be on medications but I know that this medication is my best…
What form of IBD do you have? On paper I have Ulcerative Colitis but my doctor has mentioned a couple of times that I probably have Inderterminate Colitis. So that’s pretty much what I identify as. There also isn’t a Inderterminate Colitis diagnostic code so that doesn’t help either. There was also that one time…
When does explaining what happens to people when they lose their health insurance turn into fearmongering? Fearmongering according to the Oxford dictionary is: The action of deliberately arousing public fear or alarm about a particular issue. Now I don’t see it as fearmongering. It’s the honest truth that if someone with an incurable disease loses…
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I actually had this said to me the past week. A common misconception with people who have a chronic illness is that if we’re out doing something fun we must be feeling better. Which isn’t always the case. And certainly isn’t the case with me. I had to explain to the person who said that…
Here are my five favorite summer activities. They’re not things I do all of the time. Or as often as I’d like. But I do try to make sure that I do them as often as I can. Although, when it comes to reading. I read pretty much all of the anyway. Next year hopefully…