What form of IBD do you have? On paper I have Ulcerative Colitis but my doctor has mentioned a couple of times that I probably have Inderterminate Colitis. So that’s pretty much what I identify as. There also isn’t a Inderterminate Colitis diagnostic code so that doesn’t help either. There was also that one time…
I had an appointment with my GI on August 30th. I’m glad that they were able to get me in sooner than November! We really needed to talk about what’s been going on. It’s hard to do that over the phone at times when I have to go through Dr. M’s triage nurse. As of…
After being on prednisone for 5 or 6 days I finally resided to the fact that the rectal pain was not going to go away on it’s own. I called my GI on Monday and left a message for his nurse. I heard back from her a couple of hours and she said that I…
As a person with inflammatory bowel disease the possibility of getting fissure’s, abscesses and fistula’s are always in the back of my mind. Last month I had an abscess scare. Thankfully I didn’t end up having one but the process to find that out was not a fun one. It all started out as rectal…
Today I saw my GI doctor for the first time in a year. Which to me is a good thing. It means that I wasn’t sick enough to have to go in for a visit. I did get sick a few times over the last year but they worked with me over the phone thankfully.…
One of the things I’ve noticed about my IBD is that things don’t always stay the same for long. It took me a while to figure the latest problem out but once I did I was pretty bummed about it. After three months I realized that my symptoms were getting worse in between my Humira…
WEGO Health: Living with an illness, you are more likely to face, people who don’t understand your daily struggles. Sometimes, these people can be inconsiderate and hurtful. Have you ever wanted to tell them how you really feel, but didn’t feel like you were able to? Now is your chance! Write an open letter to the people who have hurt you. What would…
The last year has been pretty rough. And has had a lot of ups and downs. In the last twelve months I’ve been diagnosed with Inflammatory Bowel Disease. First, it was Ulcerative Colitis and now I’ve been diagnosed with Indeterminate Colitis. I have a 50/50 chance of ever being diagnosed with Crohn’s Disease or Ulcerative…
I saw my PCP today. She thinks that the rash and welts that I have are probably related to my IBD and extraintestional manifestations of it. But according to the National Library of Health, psoriasis is an extraintestinal manifestation of IBD. So, who knows what exactly is going on. Now I’m on two different strengths…
Within the last month or so I’ve noticed that I’ve been getting these rashes on my face. They started up after I got off of the budesonide. My PCP and I thought that it might be a cause of going off of it. I’m now thinking that the steroids I was on were helping to…