I actually had this said to me the past week. A common misconception with people who have a chronic illness is that if we’re out doing something fun we must be feeling better. Which isn’t always the case. And certainly isn’t the case with me. I had to explain to the person who said that…
I had an appointment with my GI on August 30th. I’m glad that they were able to get me in sooner than November! We really needed to talk about what’s been going on. It’s hard to do that over the phone at times when I have to go through Dr. M’s triage nurse. As of…
Dear Speaker Ryan, Hello, my name is Mackenzie. I’m 27 years old and I’m a millennial. I am one of those “sick people” that you want to end the insurance protections provided to people who have preexisting conditions. You see, I have a preexisting condition that I was diagnosed with at 24 years old. It’s…
After being on prednisone for 5 or 6 days I finally resided to the fact that the rectal pain was not going to go away on it’s own. I called my GI on Monday and left a message for his nurse. I heard back from her a couple of hours and she said that I…
Unfortunately over the last couple of weeks I’ve started to go into a flare. And it sucks. I had an absolutely horrible day at work last Friday. I ended up shitting my pants at the hospital I was working at. I keep an emergency kit in my car for these instances and I’m glad I…
One thing I have been struggling with after getting off of steroids after 10 months of use is losing the weight I gained. At my heaviest I was 17lbs above what I normally weigh. I’m now about 13-14lbs above what I would consider my normal and it’s taking a while to get that weight off.…
For now. I’m finally off of the budesonide. I was on some form of steroid from December 28th, 2013 until October 31st, 2014. That’s a long ass time. I started off on prednisone and then moved over to budesonide. I took about 5 weeks to get off of it. I prefer the slow taper method…
“IBD just makes you poop your pants.” Have you ever had someone tell you that? I have. It was a pretty frustrating(infuriating?) moment. Because IBD is so much more than just shitting. Now, I can only talk about this from what I have experienced. Everyone with IBD experiences problems with IBD differently. My doctors don’t…
And this is pretty much how I feel about it. There’s times I feel like I’m being a baby about it but I HATE THESE INJECTIONS. They hurt, they leave bruises, the injection sites are tender for a few days. I just don’t like it. At all. Just thinking about it makes me want to…