December 5th was my yearly visit with my GI doctor. It was a very long day by myself(my trusty copilots are all out of town ☹). My doctor is 2.5 hours hours away(350+ miles and 5+ hours of driving!) and my appointment was delayed over an hour(procedures ran log, which is fine. I don’t want…
I actually had this said to me the past week. A common misconception with people who have a chronic illness is that if we’re out doing something fun we must be feeling better. Which isn’t always the case. And certainly isn’t the case with me. I had to explain to the person who said that…
I had an appointment with my GI on August 30th. I’m glad that they were able to get me in sooner than November! We really needed to talk about what’s been going on. It’s hard to do that over the phone at times when I have to go through Dr. M’s triage nurse. As of…
After being on prednisone for 5 or 6 days I finally resided to the fact that the rectal pain was not going to go away on it’s own. I called my GI on Monday and left a message for his nurse. I heard back from her a couple of hours and she said that I…
Today I saw my GI doctor for the first time in a year. Which to me is a good thing. It means that I wasn’t sick enough to have to go in for a visit. I did get sick a few times over the last year but they worked with me over the phone thankfully.…
One thing I have been struggling with after getting off of steroids after 10 months of use is losing the weight I gained. At my heaviest I was 17lbs above what I normally weigh. I’m now about 13-14lbs above what I would consider my normal and it’s taking a while to get that weight off.…
The thought of having Psoriasis have been consuming my thoughts this week. There’s times it’s a bit depressing. I don’t even have a severe case of it right now. But it’s all over my face where people can see it. If I’m not using the steroids you can’t really see it. The steroids make it…
I had an appointment with my new dermatologist today. After three months of having weird itchy dry rashes on my face I finally made it in to see one today. I will call him Dr. G. Dr. G thinks that I probably have Psoriasis although it could be several things. Like Eczema, Rosea, ect. It…
I saw my PCP today. She thinks that the rash and welts that I have are probably related to my IBD and extraintestional manifestations of it. But according to the National Library of Health, psoriasis is an extraintestinal manifestation of IBD. So, who knows what exactly is going on. Now I’m on two different strengths…
For now. I’m finally off of the budesonide. I was on some form of steroid from December 28th, 2013 until October 31st, 2014. That’s a long ass time. I started off on prednisone and then moved over to budesonide. I took about 5 weeks to get off of it. I prefer the slow taper method…